A few weeks ago, I made a posting asking for suggestions for
instructional resources to use in teaching a nine week course on
genetics to students in eighth grade. I only had a few responses, but
here they are.
Thanks to those who responded!
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Thomson Gale publishes _The Encyclopedia of Genetic Disorders_ both in
print and as an e-book.
Millbrook publishes _Genetics and Human Health_.
Franklin Watts publishes _The Human Genome Project_.
Facts on File publishes _Life Lines: The Story of the New Genetics_.
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I use the following sites with sophomores. You might find some
useful.
Accelerated Cure Project - http://www.acceleratedcure.org - a
national
nonprofit organization dedicated to curing MS by determining its
causes.
All About Multiple Sclerosis - http://www.mult-sclerosis.org/ -
"aims
to provide accurate and comprehensive medical information about
multiple
sclerosis (MS) written in plain English by people with the disease."
There
is an encyclopedia, personal narratives on different aspects of MS, a
list
of famous people with the disease, and numerous related links.
Alphabetic List of Specific Disease/Disorders -
http://www.mic.ki.se/Diseases/alphalist.html - allows you to search
for
valid sites and articles dealing with specific diseases.
ALS/MND Alliance - http://www.alsmndalliance.org - provides "a
forum
for support and the exchange of information between the worldwide
associations" concerned with the disease known as amyotrophic
lateral
sclerosis (ALS) or motor neuron disease (MND).
Alzheimer's Association - http://www.alz.org/ - discuses the facts,
health
care, medical issues and research on this disease.
Aplastic Anemia & Myelodysplastic Syndromes International Foundation,
Inc.
- http://www.aplastic.org/ - has information on bone marrow
failure
diseases (including aplastic anemia, myelodysplastic syndromes (MDS),
and
paroxysmal nocturnal hemoglobinuria (PNH)). It also provides
information
about clinical trials and research, news, and a FAQ section that
includes a
glossary of relevant medical terms and links to related sites.
Blazing a Genetic Trail: Research on Mutant Genes and Hereditary
Diseases -
http://www.hhmi.org/genetictrail/start.htm - contains many articles
on
different aspects of genetics.
Cystic Fibrosis Foundation - http://www.cff.org/ - offers news,
educational material for those seeking information on cystic fibrosis.
There
are articles on the latest research and clinical trial information.
Down Syndrome - http://www.nas.com/downsyn/ - established in February
of
1995 and has been (and still is) compiled from the contributions of
members
of the Down Syndrome Listserv and others. Includes sections on
medical
articles, health care guideline, and FAQ's.
Featured Genes - http://www.ncbi.nlm.nih.gov/SCIENCE96/genelist.cgi
-
an alphabetical list of genetic diseases. Click on the first column
for a
description of the disease, and the second to find the chromosome that
causes the disease.
Genes and Disease - http://www.ncbi.nlm.nih.gov/disease/ - click on
the
gene number to find diseases related.
Genetic Disorders & Birth Defects Information Center -
http://geneinfo.medlib.iupui.edu - provides links to information
about
genetic diseases and birth defects. It covers the basics of genetics,
including ethics, forensic uses, and career possibilities. Features
information about adult genetic risks, resources for genetic testing
and
counseling.
Genetics Home Reference: A Guide to Understanding Genetic Conditions
-
http://ghr.nlm.nih.gov/ - provides "consumer information about
genetic
conditions and the genes responsible for those conditions." A
searchable and
browseable directory includes FAQ's and links to related resources
about
specific genes and conditions. The site also offers a basic explanation
of
how genes work; a glossary; and information about genetic testing,
gene
therapy, and the Human Genome Project.
The Genographic Project -
http://www3.nationalgeographic.com/genographic/
- a collaborative effort by the National Geographic Society, IBM, and
others to "assemble the world's largest collection of DNA samples to
map how
humankind populated the planet." The study is being conducted at ten
research centers around the world; and "will result in the creation of
a
global database of human genetic variation and associated
anthropological
data (language, social customs, etc.)." The site offers an educational
Genetics Overview section, and an Interactive Atlas of the Human
Journey.
Genomic Revolution - http://www.amnh.org/exhibitions/genomics -
this
online exhibit from the American Museum of Natural History provides
this
history of the discovery of the genome.
Glossary of Genetic Terms - http://www.genome.gov/glossary.cfm -
allows you
to search to terms and diseases.
Health Information A to Z - http://www.cdc.gov/health/ - click on the
first
letter of the disease to find information concerning it.
Health Information Resources: Keyword Listing -
http://www.health.gov/nhic/AlphaKeyword.htm - allows you to search by
keyword to find a variety of diseases and heath related topics,
produced by
the National Health Information Center.
Human Genome Organization - http://www.hugo-international.org/ - this
site
is developed by The Human Genome Organization (HUGO), the
international
organization of scientists involved in the Human Genome Project (HGP),
the
global initiative to map and sequence the human genome. The best place
to
start is the "HUGO Chromosome Homepage," however, you need to know what
the
specific chromosome number is.
Human Genome Project Information -
http://www.ornl.gov/TechResources/Human_Genome/home.html - Explore
this
site for information about the U.S. and worldwide Human Genome
Project.
Allows you to do keyword searching for diseases.
Huntington's Disease Information Page -
http://www.ninds.nih.gov/disorders/huntington/huntington.htm -
contains
fact sheet on this disease, which "results from genetically programmed
degeneration of brain cells, called neurons, in certain areas of the
brain.
This degeneration causes uncontrolled movements, loss of intellectual
faculties, and emotional disturbance." Includes links to related
publications and organizations.
Jeffrey Modell Foundation - http://www.jmfworld.com/jmfworld.html - a
non-profit research foundation devoted to primary immune deficiency.
The
Foundation is active in four main areas: 1. research, physician and
patient
education, 3 .patient support, and 4. public awareness of primary
immune
deficiency.
Library Databases: TCFL - http://www.talb.lib.md.us/databases/ -
use
the databases provided at the Talbot County Free Library with your
library
card. You may find the "History and Social Sciences" databases most
useful.
Mononine - http://hemophiliab.com/about_hemB.asp - this drug for
use
with hemophilia patients contains information about the disease and
links
for further information.
Muscular Dystrophy Association - http://www.mdausa.org/ - The
Muscular
Dystrophy Association is the definitive source for news and
information
about 40 neuromuscular diseases, MDA research and services available
to
adults and children with neuromuscular diseases and their families.
National Institute of Diabetes and Digestive and Kidney Diseases -
http://www.niddk.nih.gov/ - contains articles produced by the
National
Institute of Health, with especially helpful information in the section
on
"Health Information and Education Programs."
National Institutes of Health - http://www.nih.gov/ - allows you to
search
their database for articles and press releases of their findings.
The National Parkinson Foundation - http://www.parkinson.org/ - A
nonprofit organization dedicated "to find the cause and cure of this
disease
and other neurological disorders in our lifetime." Links to related
sites,
current research, and brochures.
NCI's CancerNet Cancer Information - http://cancernet.nci.nih.gov/ -
"accurate, credible cancer information brought to you by the National
Cancer Institute (NCI). CancerNet information is reviewed regularly
by
oncology experts and is based on the latest research."
NOAH: The National Organization for Albinism and Hypopigmentation -
http://www.albinism.org/ - "NOAH is a volunteer organization for
persons
and families involved with the condition of albinism. It does not
diagnose,
treat, or provide genetic counseling. It is involved in self-help,
while
trying to promote research and education." The site provides
information
bulletins on topics such as ocular albinism and sun protection;
information
for children with albinism, including vision and education issues;
discussion forums; and related links.
OmniMedicalSearch - http://www.omnimedicalsearch.com/ - will search
15
medical search sites to help you find health information.
OncoLink: - http://www.oncolink.com - answers questions on specific
types
of cancer, its causes and prevention, treatment and FAQ's from the
Cancer
Center of the University of Pennsylvania.
Sickle Cell Information Center - http://www.SCInfo.org - "The mission
of
this site is to provide sickle cell patient and professional
education,
news, research updates and world wide sickle cell resources."
The Symphony of Life - http://www.med.umich.edu/genetics/home.htm
-
provides basic information about genetics and medicine in jargon-free
English. Browse through sections devoted to various genetic diseases
to
obtain a brief overview of each condition, and about ongoing research
projects at the University on each particular disease. A glossary and
terms
section is also available.
Tourette Syndrome Association - http://www.tsa-usa.org/ - includes a
definition, myths about TS, famous people with it, and answers to
Frequently
Asked Questions.
Understanding Genetics -
http://www.thetech.org/exhibits/online/ugenetics/
- visitors can peruse the questions posed to geneticists in the "Ask
a
Geneticist" feature, browse a selection of recent news stories
regarding
genetics, and take a survey on the ethical questions posed by the
issues of
stem cell research and genetically modified foods. The feature story is
a
fine resource as well, as it provides basic, non-jargon-laden answers
to
such question as "What is a gene?" and "How do genes work?"
Your Genes, Your Health - http://yourgenesyourhealth.org/ - "an
ongoing
multimedia guide to genetic disorders." Currently includes 15
different
disorders.
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