HIT: books on Hemophilia

["Przeclawski, Gail" <przeclg@OCPS.K12.FL.US>]

WOW! What an amazing group! I got lots of information and ideas to help =
the
first grade teacher with a hemophiliac in her class, including books. =
Free
books no less. I also spoke to a very nice lady named Gita at Coram
Hemophilia Services, she is the "patient advocate" for the company and =
she
was wonderful. I found her through the first response I received from
LM_NET. The website is listed below, along with other helpful =
responses. I
forgot to ask if I could include the names of the people who helped me =
so I
am just posting the comments without names. I do want to thank each one =
of
you for taking the time to help me. I am so lucky to be in a profession
where the very nature of that profession ensures that my peers will be
intelligent, resourceful individuals committed to helping others.

******************************
Go to this website: http://www.coramhemophilia.com/resources.htm=20
Click on: For Kids
Scroll down.=20
It's order no: K3 =20
It looks like you can order it for free.=20
*******************************
Hi,  We've also got a first grader with hemophilia.  The local hospital =
came
and talked with the staff and had pamphlets, etc.  You might contact =
the
hospital or the local chapter of hemophiliacs for info to share.

*********************************************
I would hope a pediatrician who specializes in hemophilia might be able =
to
make a suggestion.... maybe a call to a local dr. or hospital would =
point
you in the right direction.

On the other hand, sometimes too much information is a bad thing... do =
they
really need to know exactly why the child wears a helmet?

**********************************
Your dilemma peaked my interest...I checked Amazon.com and found =
nothing for
kids level. I checked our Minuteman Library System and came up with =
this
adult book...but it says it has bibliographic references - they are =
probably
all adult books, but maybe not. You might also try contacting the =
National
Organization: National Hemophilia Foundation 116 West 32nd Street, 11th
Floor New York, NY 10001  212-328-3700 =B7 800-42-HANDI =B7 Fax =
212-328-3777
info@hemophilia.org

Good luck

"My blood doesn't have muscles!": how children understand hemophilia =
from
preschool to adolescence / by Laureen A. Kelley.
 Publisher : U.S.A. : [s.n.] ; Collegeville, PA : Distributed by
Armour Pharmaceutical Co., c1993.
 Subject Heading(s) :
                   Hemophilia in children.
                   Hemophilia.
 Description :
                   xiii, 152 p., [16] p. of plates : col. ill., col. =
ports.
; 23 cm.
 Notes :
                   "A developmental approach for parents and =
practitioners."
                   Includes bibliographical references (p. 148-149).
                   "893M(10)A, FC#M108"--P. 4 of cover.
 ISBN :
                   $8.95
 ********************************
Here is contact info for their publishing division: Armour =
Pharmaceutical
Co., Attn: Ms. Pat Amey, 500 Archola Road (3B18), P.O. Box 1200,
Collegeville, PA 19426-0107.=20

You also may wish to check out the National Hemophilia Foundation
(http://www.hemophilia.org/).

**************************=20
Again, thanks to all, both for the help and for making me look good! =
When I
told the teacher that I had materials ordered and a contact if she =
wished
any speakers or workshops for teachers and/or students she was almost
speechless. She finally said, "but I only talked to you about this
yesterday". When I explained about LM_NET she thought the whole set up =
was
just too cool. And she's right!
Long live LM_NET,
Gail
******************
Gail Przeclawski, Media Specialist
Lawton Chiles Elementary School
11001 Bloomfield Drive, Orlando FL 32825
Phone: 407.737.1470 ext. 227
 Fax:    407.737.1471

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